Privacy Policy
National Perinatal Loss Collaborative
A Jane’s Room and Return to Zero: HOPE Initiative
Effective Date: January 1, 2026
1. Introduction
The National Perinatal Loss Collaborative ("Collaborative," "we," "our," or "us") is committed to protecting the privacy and confidentiality of our members, partners, and users. This Privacy Policy explains how we collect, use, store, and protect your information when you engage with our online learning and communication platform, events, and services.
Given the sensitive nature of perinatal loss care, we take privacy, professionalism, and ethical responsibility seriously.
2. Information We Collect
We collect information in the following ways:
a. Information You Provide Directly
• Name, title, and professional credentials
• Organization or affiliation
• Email address and contact information
• Profile details
• Payment and billing information
• Communications submitted through forums, messages, or consultations
b. Platform Activity Information
• Participation in discussion forums, roundtables, and webinars
• Course enrollment and completion data
• Continuing education (CE) records
• Resource downloads and engagement
c. Organizational Data (Institutional Members)
• Organization name and participating users
• Training participation and utilization data
• Program implementation and assessment data
d. Automatically Collected Information
• IP address, browser type, and device information
• Usage data, including pages visited and time spent on the platform
• Cookies and similar technologies (see Section 9)
3. How We Use Your Information
We use collected information to:
• Provide and manage access to the Collaborative platform
• Facilitate learning, communication, and peer connection
• Deliver courses, webinars, and continuing education credits
• Maintain CE completion records for accreditation, certification, and audit purposes
• Support consultation, mentorship, and program implementation
• Improve platform functionality, content, and user experience
• Communicate updates, opportunities, and relevant information
• Process payments and manage memberships
• Generate aggregated, de-identified reports for institutional partners
4. Sensitive Information, HIPAA, and Professional Conduct
Due to the nature of perinatal bereavement care:
• The platform is not intended for the sharing of protected health information (PHI) or identifiable patient data
• Users are solely responsible for ensuring compliance with applicable privacy laws and professional standards, including HIPAA where applicable
• The Collaborative does not act as a covered entity or business associate for user-generated content shared on the platform
• All discussions must maintain strict patient confidentiality
• We reserve the right to remove content that violates these standards
5. Information Sharing and Disclosure
We do not sell personal information. We may share information in the following limited circumstances:
a. With Service Providers
Third-party vendors who support platform operations (e.g., hosting, payment processing), under strict confidentiality agreements
b. Within the Collaborative Community
• Profile information may be visible to other members
• Forum contributions and participation may be visible within the platform
c. With Organizational Members
• Aggregated and de-identified participation and engagement data may be shared with institutional partners
• No individual-level performance or activity data will be shared without the explicit consent of the user
d. Accreditation and Compliance
• CE completion and participation data may be shared with accrediting or certifying bodies as required for compliance, auditing, or credentialing purposes
e. Legal and Safety Requirements
• When required by law or to protect rights, safety, or integrity of the Collaborative and its users
6. Data Security
We implement reasonable administrative, technical, and organizational safeguards to protect your information, including:
• Secure platform infrastructure
• Access controls and authentication
• Encryption where appropriate
7. Data Retention
We retain information only as long as necessary to:
• Provide services and maintain membership records
• Comply with legal, financial, and accreditation requirements
• Support continuing education documentation
Users may request deletion of their data, subject to legal and operational requirements.
8. Communications and Preferences
We may send the following types of communications:
• Transactional communications (e.g., account access, billing, course confirmations) — these are required for use of the platform
• Program-related communications (e.g., webinars, roundtables, Collaborative updates)
• Optional marketing communications (e.g., new offerings, events, opportunities)
Users may opt out of non-essential communications at any time through account settings or email preferences.
9. Cookies and Tracking Technologies
We use cookies and similar technologies to:
• Improve platform functionality and performance
• Understand user engagement
• Personalize user experience
Users may manage cookie preferences through their browser settings.
10. Third-Party Links and Services
The platform may include links to third-party websites or services. We are not responsible for the privacy practices of those third parties.
11. Children’s Privacy
The Collaborative is intended for professional use and is not directed toward individuals under 18.
12. Community Standards
Participation in the Collaborative is also governed by our Member Agreement which outlines expectations for respectful, confidential, and professional engagement. Users are expected to adhere to these standards at all times.
13. Changes to This Policy
We may update this Privacy Policy periodically. Updates will be posted on the platform with a revised effective date.
14. Contact Us
For questions, concerns, or requests regarding this Privacy Policy, please contact:
National Perinatal Loss Collaborative
Email: nplc@janesroom.org
15. Acknowledgment
By using the platform, you acknowledge that you have read and understood this Privacy Policy and agree to its terms.
